Wednesday, September 24, 2008

Get the word out!!

Hello everyone,
Darius Weems is a young man who has inspired me. He is living with Duchenne Muscular Dystrophy. He lost his older brother to DMD.
He wants to sell one million DVD’s in one year about him and his best friends traveling across the country trying to “Pimp” his ride. The quest began in September and almost 14000 copies have been sold. A long way to go. The DVD’s are $20 - $17 goes toward MD research, which is much needed to help find a treatment or cure for this devastating illness and $3 to make more DVD's.I haven't seen the DVD, it’s ordered and on its way, but if you YouTube Darius Weems you can see the trailer of the DVD. You can visit his website at www.dariusgoeswest.org to buy the DVD. He is a real hero and a great inspiration for my boys and his story has really hit home with us.
Also on the Project Parent website, www.parentprojectmd.org there are Christmas Cards and ornaments for sale, with every penny raised toward MD research. Project Parent was started by a mother, Pat Furlong who lost both of her boys to DMD - within 6 months of each other. She is also another inspiration to me and our family.Please give generously to this cause, with your help we may be able to find a treatment or cure for these boys, and bring some hope to the parents and families of these children. I have learned recently that I am a carrier of this mutated gene, this means Mathieu has inherited this gene from me. A hard reality.We are in the process of finding out whether this is something I have inherited from my mother or if it was just spontaneous at my conception. The chances of our little one, Malaky being infected is 50/50. Some hard numbers to swallow. We hope and pray everyday, all day, that they find the treatment to reverse this devastating disease, or better a cure, and that it saves my boys, and all the kids with this. Please give generously.
Marian